August 25, 2010
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Greetings to Creatures in Xangaland. My mood and general countenance is employed by some evil entity that chose to bless my grandson with muscular dystrophy. I am discovering that this is not an easy thing to get around and that it’s difficult because things have always been easy for me to get around. The death of my parents, the death of three close friends in six months, five surgeries for myself, four surgeries for lover, breast cancer in lover, and lung and breast cancer in my sister were not that difficult to get around because that faze of the journey completed and they were ready for the next phase of the journey. Roux, however, has a much more difficult journey because it will take many years of decreasing physical function before he will be free to continue his journey. The very difficult thing about being a mother of a child with muscular dystrophy is that you have to be a caretaker for your beloved child through a painful journey. The very difficult thing about being a grandparent of a child with muscular dystrophy is that you have to watch the child cope with his journey the best way he knows how and you also have to watch your daughter and son-in-law share his pain and live with their own pain. That is definitely the downside. The up side, such as it is, is that I realize how many people love and support me and it brings to light that love for my grandson and daughter and son-in-law is incredibly important, because without all of the love and understanding I have received I wouldn’t make it. You guys are wonderful and every one of you is a beautiful soul.
Keep the faith,
david
Comments (4)
You set that example and raise the bar. All the best and thank you for sharing your honest feelings about a hard to face situation. You will rise to this, I know you will. But your honesty and worry and angst are real and allows you and all of us to be human along side of you.
Love and hugs – Cassi
OMG David, I’m so sorry to hear about your sweet grandbaby.
Your beautiful soul allows you to see an upside where many never do. I’ll add your family to my prayers. Take Care of yourself my friend!
David,
Your writing has always has an affect on me and on a whim I decided to stop back by your side and your words, and Roux’s story had a powerful impact on me. Your perspective and attitude give us all something to reflect upon. My heart goes out to Roux and his family.
Not long ago my sister gave birth a beautiful baby girl named Taylor and not long after she was diagnosed with Down Syndrome…..
To make a long story short……your words have given me a new perspective on my relationship ( and my responsibility) with my sister and her beautiful baby girl.
thank you for sharing,
mark
I hope you find your peace in this, and that your grandson will find happiness and the best health possible. You will be in my prayers, such as they are.